Living with Lupus

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Living with Lupus can be very challenging in your day-to-day life, for your family, as well as your career. Changes in your outward appearance, chronic fatigue, and the emotional hardship related to having a terminal illness can put a strain on your relationships. The more people around you who understand your symptoms, the more likely they are to be more accepting of your condition, which can make for a less stressful life.

With certain lifestyle changes and a great network of support, many  patients live a very ordinary life. Suggested lifestyle changes are:

Stay up to date on the latest treatments of Lupus. Educate yourself about the disease and stay up-to-date on the latest findings as well as new treatments.

See your doctor regularly. Constant monitoring is essential in the treatment of lupus.

Avoid stress as much as possible. High stress environments elevate lupus flares.

Reduce activity when fatigued. Learn how your body uses energy and when to decrease activity before fatigue sets in. Be sure your family and friend understand your condition so they are understanding and supportive of your needs.

Avoid ultraviolet rays as much as possible. Use sun screen every time you go outside. Even minimal sunlight can aggravate lupus and worsen symptoms.

Maintain a healthy diet full of fruits and vegetables, and omega 3 fatty acids (anti-inflammatory supplements).

Keep your weight down through moderate exercise. Each patient will vary in which activities are best and in duration.

Seek help through counseling and support groups. There are many support groups within your community as well as online forums to meet and connect with others who have lupus. People in these community can best understand your and relate to you. It is also a great source of information regarding the latest treatments and clinical trials.

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